The POTScast

68
Medicine #131

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.

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  • MeliDiamonds
    Good information!
    This is a good podcast and it’s very informative hence going to my doctor in vegas leads to just saying you are fine, when my body doesn’t say so and so as my blood work. I have very high Ige, sensitive to foods and I also have anemia. This podcast helps me take the steps on what’s really going on because doctors seem to just brush it off as if they don’t want to help in any way! ❤️
  • proved point
    Love this! So helpful and upbeat.
    I absolutely love having a place to get good info about POTS and… importantly… the other conditions that come with it, like MCAS and hEDS… where the people understand, care, and have an upbeat attitude about it. I especially like the contrast of the POTS Practitioners episodes for expertise versus the POTS Diaries episodes for the experiences of patients. The other types of episodes are great also. Thank you to the volunteers making this. It must be a lot of work. I appreciate it hugely. Whenever I’m lying around waiting to feel good again I put on an episode and feel understood.
  • Margaret000
    Thank you for your service ♥️
    Thank you for creating this podcast. It makes me feel so much less alone! Our stories are all so similar. Thank you thank you thank you ♥️
  • Faithfully Driven11
    Living w POTS
    As someone who has POTS, I can totally relate to everything here on this podcast. Thank you for sharing this information and help.
  • POTSy me
    Great info delivered by lovely people
    This is great and I especially appreciate the POTS Basics episodes, where Dr. Cathy Pederson, the neurobiology professor and President/founder of Standing Up to POTS always explains things so clearly. And with so much compassion and empathy. These episodes are great for helping my family understand POTS better.
  • Oflores22
    So amazing!
    This has been such an incredible tool. I was diagnosed with POTS and had never heard of it. I’ve learned so much, Jill is awesome , I’ve taken away some amazing tips, and look forward to hear others stories who are going through the same. Thanks so much for talking about pots and making it a bit easier with those of struggling with it.
  • potssib
    Great Podcast!!
    As a person who does not know much about the medical world, I find this podcast very informational and easy to understand. Although these concepts are foreign to me, it is explained in such a great, relatable way.
  • POTS mom
    Amazing resource for POTS families
    What an amazing resource for the chronic illness community! I wish there had been something like this around when my daughter was first diagnosed!
  • hou756
    Wow this is a great podcast
    I just listened to the recent episode about Jill and her husband. It was so touching and brought tears to my eyes. It also made me so thankful that there are kind and positive people helping those who have been dealt the POTS card in life. Thank you for this outstanding resource.
  • shannon---
    umm
    I just heard part of a letter I wrote mixed in with another letter I definitely did not write.. but it was said in “quotes” from supposedly one person? Kind of ironic for an episode on gaslighting…
  • bagel football runner up
    Reaching for Help
    This Podcast is a lifesaver! I would like to hear an episode about Aspergers and POTS. The Aspergers symptoms plus POTS symptoms make it very difficult for my daughter, in regards to anxiety, stress, fight or flight etc.
  • KJ 02
    Thank you!
    Thank you for talking about POTS and life with it. Jill does an EXCELLENT job at interviewing and has great questions. As a teenager with POTS Lily’s story was so encouraging to listen too, and helps me feel less alone in my experience. I too have dealt with doctors telling me that it is all in my head, but was finally diagnosed just this year after dealing with it for 5 years. I would love to hear the experiences of more teens with POTS (or people who dealt with it in their teenage years) on the podcast sometime. Thank you so much for helping me feel understood, and for providing a comforting and uplifting place for POTS patients!
  • RGregis
    New patient and FNP
    I’m very excited to learn more. I would love to see some coverage on the different types of POTS, such as hyperadrenergic and the differences in treatment for hypovolemic vs euvolemic said patients.
  • Bella a2147
    Finally!
    Great concept for a much needed topic! Can’t wait to see more!
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